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Francesca has hit some “bumps in the road”. She still has retained so much fluid that we cannot make much progress weaning her ventilator. She has some response to the lasix drip but not enough to make a big difference. “Tincture of time” is what one nurse said. Not what a mother wants to hear necessarily. It is amazing to watch the intricate balance of titrating drips and vent settings according to her lab values and how she responds. She does not tolerate even being turned, weighed or Xrayed without an episode of desatting and dropping her BP. Her condition could be worse and it could be better. We always see families in worse situations and are grateful for the progress that she has made

After awhile the combination of circumstances all starts to get to get to you. The stress of Frankie’s condition, the family’s separation, the teenage issues, etc. Then I read the guestbook and am absolutely assured that we are held up in prayer by beloved family and friends and even those we do not know. We have the grace to make it thorough another day.

Please keep Frankie in your prayers. Her heart was practically redesigned! She has a long road to recovery! If you could also maybe give Jean, her mom some words of encouragement she is always so grateful! It means more than you can imagine.

Thanks
frankie

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